Imagine having a condition so rare that the top specialists are unable to diagnose you. In fact, after further research, they explain they need to name your condition after you. This is the story of Kate Kobbermann and her remarkable life with Kobbermann Syndrome.
This episode is Part 1 of a 2 episode podcast. In this episode, Kate and her mother discuss the timeline of her life beginning with her birth and ending with the diagnosis of Kobbermann Syndrome
Erin's Law is the first U.S. child sexual abuse prevention education law requiring children be educated in school about identifying sexual abuse. Thus far, the law has been passed in 31 states with 17 additional states preparing to vote on the bill in 2017 or 2018.
Judith Newman, author of the acclaimed book, To Siri With Love, joins Bill to discuss the inspiration for her latest book, her son Gus. Gus, who has Autism, developed a relationship with Siri, Apple’s automated assistant, who helped enhanced his communication skills and allowed him to strengthen his relationships with his family and the people around him.
Two sisters. Same condition. Both blind.
Both Julie and Cheryl Gistenson lost their vision due to Axenfeld-Rieger Syndrome. The sisters discuss growing up as one another's supports and what they learned from their father, who is also blind. Bill then plays a game called "Ask A Blind Person" in which Bill asks questions about blindness that sighted individuals may feel too uncomfortable to ask.
In 2013, after undergoing months of fertility treatment, Stacey Skrysak’s three children, Peyton, Parker and Abby, were born prematurely. Tragically, both Parker and Abby passed away in the hospital. After returning home with their surviving triplet, Stacey and her husband, Ryan, created the Triple Heart Foundation to honor the memory of Abby and Parker.
Bill and Stacey discuss her journey with infertility treatment, the day she delivered her children and the families Triple Heart Foundation has touched since its inception.
Minimalism is a lifestyle in which an individual removes unnecessary items from their life in an attempt to focus on what is important so that they can better themselves and focus on what truly matter to them.
Bill sits down with Erin Gianaras, who at age twenty-seven suffered a life-altering stroke while running errands on a hot summer day. Erin shares intimate details of that day and how she spent the past year recovering and rebuilding her life.
The first guest of the podcast is Megan King. Megan is an advocate for Ehlers-Danlos Syndrome (EDS). Megan was diagnosed with EDS when she was in high school. For the better portion of the past decade, Megan has been chronicling her battle online in an attempt to raise EDS awareness, as EDS is a condition that is underrepresented in society and lacks resources within the medical community.
People You Should Know Podcast will feature guests who are striving to create change. These people are either leading philanthropic organizations, raising awareness for a cause they are passionate about, inventing devices that will change the future or creating art, all while attempting to reshape the conversation around a topic that is dear to their heart.
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