Viewing entries tagged
People You Should Know Podcast

Paula Miller - Adult Congenital Heart Association

Paula Miller - Adult Congenital Heart Association

In this episode, Bill and Paula spread Congenital Heart Defect (CHD) awareness by breaking down certain terminologies into layman's terms to help the general public better understand the impact CHD's have on thousands of lives each year. The podcast also explores the work the Adult Congenital Heart Association (ACHA) is doing to strengthen the community of CHD survivors.

Bridgette Ferraro - The Holiday Heroes

Bridgette Ferraro - The Holiday Heroes

As the Executive Director of The Holiday Heroes, a Chicagoland nonprofit that aims to add happiness to the lives of hospitalized children, Bridgette guides the organization in their mission to allieviate the stress, anxiety and sorrow many children feel while battling a serious condition. In this episode, Bridgette joins Bill to discuss The Holiday Heroes' unique history, the parties and what makes their mission so special.

Kate Kobbermann - Kobbermann Syndrome (Part 2)

Kate Kobbermann - Kobbermann Syndrome (Part 2)

Episode 13:

This week is the conclusion of the two-part interview with Kate Kobbermann. Bill and Kate discuss the severe pain associated with Kobbermann Syndrome and the extreme lengths she has gone to in an attempt find a remedy for her pain, including moving her life across the country and spending thousands of dollars on medical cannabis.

About Kobbermann Syndrome:

Based on Kate's experiences, her syndrome has been classified as one that causes skeletal fragility, which is potentially caused by a unique strand of DNA.

Jonny Imerman - Imerman Angels (Cancer Support)

Jonny Imerman - Imerman Angels (Cancer Support)

Episode 8:

After beating cancer, Jonny Imerman realized there needed to be a network for cancer fighters to connect with cancer survivors, so he founded Imerman Angels. Jonny and Bill discuss the creation of Imerman Angels, the speed in which the foundation has grown, and then Jonny provides current cancer fighters with a word of advice.

About Imerman Angels:

Imerman Angels provides free, personalized, one-on-one cancer support for cancer fighters, survivors and caregivers across the globe. To learn more, visit imermanangels.org.

IA.PNG

ABOUT BILL COON

Bill Coon is a two-time heart transplant recipient, kidney recipient, author, professional speaker and patient advocate.

After being diagnosed with end-stage heart and kidney failure in 2009, Bill later spent 70 days in the Intensive Care Unit of a Chicago hospital waiting for the gift of life. While he waited, Bill wrote a journal each day with the hope of someday creating a book that would serve as a support system to anybody who was ill. That book later became SWIM: A Memoir of Survival, an international seller that has aided thousands in overcoming the mental battle of various illnesses. Bill later went on to become a patient advocate and sought-after speaker who uses his story to inspire thousands each year. 

Julie & Cheryl Gistenson - Blindness

Julie & Cheryl Gistenson - Blindness

Two sisters. Same condition. Both blind.
Both Julie and Cheryl Gistenson lost their vision due to Axenfeld-Rieger Syndrome. The sisters discuss growing up as one another's supports and what they learned from their father, who is also blind. Bill then plays a game called "Ask A Blind Person" in which Bill asks questions about blindness that sighted individuals may feel too uncomfortable to ask.

Stacey Skrysak - Triple Heart Foundation

Stacey Skrysak - Triple Heart Foundation

In 2013, after undergoing months of fertility treatment, Stacey Skrysak’s three children, Peyton, Parker and Abby, were born prematurely. Tragically, both Parker and Abby passed away in the hospital. After returning home with their surviving triplet, Stacey and her husband, Ryan, created the Triple Heart Foundation to honor the memory of Abby and Parker.

Bill and Stacey discuss her journey with infertility treatment, the day she delivered her children and the families Triple Heart Foundation has touched since its inception.

Jay Austin - Minimalism

Jay Austin - Minimalism

Minimalism is a lifestyle in which an individual removes unnecessary items from their life in an attempt to focus on what is important so that they can better themselves and focus on what truly matter to them.

Erin Gianaras - 27 Year-Old Stroke Survivor

Erin Gianaras - 27 Year-Old Stroke Survivor

Bill sits down with Erin Gianaras, who at age twenty-seven suffered a life-altering stroke while running errands on a hot summer day. Erin shares intimate details of that day and how she spent the past year recovering and rebuilding her life.

Megan King - Ehlers-Danlos Syndrome

Megan King - Ehlers-Danlos Syndrome

The first guest of the podcast is Megan King. Megan is an advocate for Ehlers-Danlos Syndrome (EDS). Megan was diagnosed with EDS when she was in high school. For the better portion of the past decade, Megan has been chronicling her battle online in an attempt to raise EDS awareness, as EDS is a condition that is underrepresented in society and lacks resources within the medical community.

People You Should Know Podcast

Comment

People You Should Know Podcast

People You Should Know Podcast will feature guests who are striving to create change. These people are either leading philanthropic organizations, raising awareness for a cause they are passionate about, inventing devices that will change the future or creating art, all while attempting to reshape the conversation around a topic that is dear to their heart.

Preview the podcast and subscribe today!

Comment