Born with a Congenital Heart Defect in 1967, Pete Mullady’s lifelong medical story has taken him and his family from Tennessee to Minnesota in search of the best medical care. Along the way, Pete was diagnosed with Protein Losing Enteropathy (PLE), which causes his body to leak valuable protein into his intestine. Pete shares his story, his takes on the medical field and the personal goals that keep him going.
Imagine having a condition so rare that the top specialists are unable to diagnose you. In fact, after further research, they explain they need to name your condition after you. This is the story of Kate Kobbermann and her remarkable life with Kobbermann Syndrome.
This episode is Part 1 of a 2 episode podcast. In this episode, Kate and her mother discuss the timeline of her life beginning with her birth and ending with the diagnosis of Kobbermann Syndrome
Erin's Law is the first U.S. child sexual abuse prevention education law requiring children be educated in school about identifying sexual abuse. Thus far, the law has been passed in 31 states with 17 additional states preparing to vote on the bill in 2017 or 2018.
Two sisters. Same condition. Both blind.
Both Julie and Cheryl Gistenson lost their vision due to Axenfeld-Rieger Syndrome. The sisters discuss growing up as one another's supports and what they learned from their father, who is also blind. Bill then plays a game called "Ask A Blind Person" in which Bill asks questions about blindness that sighted individuals may feel too uncomfortable to ask.
In 2013, after undergoing months of fertility treatment, Stacey Skrysak’s three children, Peyton, Parker and Abby, were born prematurely. Tragically, both Parker and Abby passed away in the hospital. After returning home with their surviving triplet, Stacey and her husband, Ryan, created the Triple Heart Foundation to honor the memory of Abby and Parker.
Bill and Stacey discuss her journey with infertility treatment, the day she delivered her children and the families Triple Heart Foundation has touched since its inception.