Viewing entries tagged
pysk

Bridgette Ferraro - The Holiday Heroes

Bridgette Ferraro - The Holiday Heroes

As the Executive Director of The Holiday Heroes, a Chicagoland nonprofit that aims to add happiness to the lives of hospitalized children, Bridgette guides the organization in their mission to allieviate the stress, anxiety and sorrow many children feel while battling a serious condition. In this episode, Bridgette joins Bill to discuss The Holiday Heroes' unique history, the parties and what makes their mission so special.

Pete Mullady - Protein Losing Enteropathy (PLE)

Pete Mullady - Protein Losing Enteropathy (PLE)

Born with a Congenital Heart Defect in 1967, Pete Mullady’s lifelong medical story has taken him and his family from Tennessee to Minnesota in search of the best medical care. Along the way, Pete was diagnosed with Protein Losing Enteropathy (PLE), which causes his body to leak valuable protein into his intestine. Pete shares his story, his takes on the medical field and the personal goals that keep him going.

Kate Kobbermann - Kobbermann Syndrome (Part 2)

Kate Kobbermann - Kobbermann Syndrome (Part 2)

Episode 13:

This week is the conclusion of the two-part interview with Kate Kobbermann. Bill and Kate discuss the severe pain associated with Kobbermann Syndrome and the extreme lengths she has gone to in an attempt find a remedy for her pain, including moving her life across the country and spending thousands of dollars on medical cannabis.

About Kobbermann Syndrome:

Based on Kate's experiences, her syndrome has been classified as one that causes skeletal fragility, which is potentially caused by a unique strand of DNA.

Kate Kobbermann - Kobbermann Syndrome

Kate Kobbermann - Kobbermann Syndrome

Imagine having a condition so rare that the top specialists are unable to diagnose you. In fact, after further research, they explain they need to name your condition after you. This is the story of Kate Kobbermann and her remarkable life with Kobbermann Syndrome.

This episode is Part 1 of a 2 episode podcast. In this episode, Kate and her mother discuss the timeline of her life beginning with her birth and ending with the diagnosis of Kobbermann Syndrome

The Batman of San Antonio - Helping Sick Children

The Batman of San Antonio - Helping Sick Children

Episode 11:

For the better portion of the past decade, The Batman of San Antonio has been helping sick children in the San Antonio, TX area regain the strength to continue fighting their ailments. What began with a tragic accident has evolved into a lifelong passion. This is the wild, shocking, sad and uplifting story of San Antonio’s Caped Crusader.

About The Batman of San Antonio:

You can learn more about The Batman of San Antonio by visiting The Batman of San Antonio's website.

ABOUT BILL COON

Bill Coon is a two-time heart transplant recipient, kidney recipient, author, professional speaker and patient advocate.

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After being diagnosed with end-stage heart and kidney failure in 2009, Bill later spent 70 days in the Intensive Care Unit of a Chicago hospital waiting for the gift of life. While he waited, Bill wrote a journal each day with the hope of someday creating a book that would serve as a support system to anybody who was ill. That book later became SWIM: A Memoir of Survival, an international seller that has aided thousands in overcoming the mental battle of various illnesses. Bill later went on to become a patient advocate and sought-after speaker who uses his story to inspire thousands each year.

Erin Merryn - Erin's Law

Erin Merryn - Erin's Law

Erin's Law is the first U.S. child sexual abuse prevention education law requiring children be educated in school about identifying sexual abuse.  Thus far, the law has been passed in 31 states with 17 additional states preparing to vote on the bill in 2017 or 2018. 

Judith Newman - To Siri With Love

Judith Newman - To Siri With Love

Judith Newman, author of the acclaimed book, To Siri With Love, joins Bill to discuss the inspiration for her latest book, her son Gus. Gus, who has Autism, developed a relationship with Siri, Apple’s automated assistant, who helped enhanced his communication skills and allowed him to strengthen his relationships with his family and the people around him.