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rare disease

Kate Kobbermann - Kobbermann Syndrome (Part 2)

Kate Kobbermann - Kobbermann Syndrome (Part 2)

Episode 13:

This week is the conclusion of the two-part interview with Kate Kobbermann. Bill and Kate discuss the severe pain associated with Kobbermann Syndrome and the extreme lengths she has gone to in an attempt find a remedy for her pain, including moving her life across the country and spending thousands of dollars on medical cannabis.

About Kobbermann Syndrome:

Based on Kate's experiences, her syndrome has been classified as one that causes skeletal fragility, which is potentially caused by a unique strand of DNA.

Kate Kobbermann - Kobbermann Syndrome

Kate Kobbermann - Kobbermann Syndrome

Imagine having a condition so rare that the top specialists are unable to diagnose you. In fact, after further research, they explain they need to name your condition after you. This is the story of Kate Kobbermann and her remarkable life with Kobbermann Syndrome.

This episode is Part 1 of a 2 episode podcast. In this episode, Kate and her mother discuss the timeline of her life beginning with her birth and ending with the diagnosis of Kobbermann Syndrome